News
May 1, 2019
Novartis to Present Data Regarding Spinal Muscular Atrophy (SMA) and Zolgensma® at the American Academy of Neurology Meeting
Novartis announced today it will present data regarding spinal muscular atrophy (SMA) at the upcoming 71st American Academy of Neurology (AAN) meeting May 4 - 10 in...
Topics: Clinical Trials, Research, Front Page News
April 29, 2019
2019 Annual SMA Conference Registration Closes May 17
Registration for the 2019 Annual SMA Conference closes on Friday, May 17th.
Hotel rooms are rapidly booking up – be sure to make your reservations ASAP before they’re all sold out!
Please note when arranging your travel plans...
Topics: Conference, Front Page News
April 29, 2019
Genentech Presents New Data at the 2019 AAN Annual Meeting
Genentech, a member of the Roche Group, announced today that new data will be presented at the 71st American Academy of Neurology (AAN) Annual Meeting from May 4-10 in...
Topics: Clinical Trials, Research, Front Page News
April 24, 2019
Community Spotlight: Kyle and Laura Derkowski
Kyle and Laura Derkowski live in Ashburn, Virginia and are co-chairs of the Cure SMA Virginia Chapter. Kyle is originally from Schenectady, New York and Laura from Bethlehem, Pennsylvania; the pair met during their first year in college through a mutual friend and were married in December...
Topics: Community & Awareness, Front Page News
April 17, 2019
AveXis Data Reinforces Effectiveness of Zolgensma® in Treating SMA Type 1
AveXis, a Novartis company, today announced that interim data from its Phase 3 STR1VE trial of Zolgensma®(AVXS-101) in spinal muscular atrophy Type 1 showed prolonged event-free survival,...
Topics: Clinical Trials, Research, Front Page News
April 17, 2019
Biogen Presents New Data Regarding Adults and Infants with SMA
Biogen has announced it will present new data illustrating the rapidly progressive nature of spinal muscular atrophy (SMA) in adults, adolescents and older...
Topics: Clinical Trials, Research, Front Page News
April 16, 2019
Community Update Survey Q&A
Cure SMA recently launched the third annual Community Update Survey to address important issues in SMA treatment and care. The Community Survey covers several areas that are relevant to the real-world experiences of people living with spinal muscular...
Topics: Community & Awareness, Our Impact, Research, Front Page News
April 16, 2019
2019 Annual SMA Conference Events Announced
The 2019 Annual SMA Conference is just over two months away and Cure SMA is excited to announce the details of the events held at this year’s conference.
Open to all conference attendees, the popular Meet & Greet will be held on the...
Topics: Conference, Front Page News
April 12, 2019
Cure SMA Grants More Than 900 Scholarships for Annual SMA Conference
Cure SMA is pleased to share that we have granted over 900 scholarships to date for the Annual SMA Conference taking place June 28-July 1, 2019 at Disneyland Resort in Anaheim, CA. Each year, the organization offers scholarships to newly diagnosed families, adults (18 and over) with SMA, and...
Topics: Support & Care, Conference, Front Page News
April 11, 2019
Cure SMA Care Center Network Expands to 10 Sites
In 2018, Cure SMA launched the SMA Care Center Network, a collection of specialized clinics across the nation to help ensure all those living with spinal muscular atrophy (SMA) are able to receive high-quality, multidisciplinary care and access to new therapies. As of April 2019 there are 10...
Topics: Support & Care, Our Impact, Front Page News
CureSMA
@CureSMA
CureSMA
