News

April 17, 2019

AveXis Data Reinforces Effectiveness of Zolgensma® in Treating SMA Type 1

AveXis Data Reinforces Effectiveness of Zolgensma® in Treating SMA Type 1

AveXis, a Novartis company, today announced that interim data from its Phase 3 STR1VE trial of Zolgensma®(AVXS-101) in spinal muscular atrophy Type 1 showed prolonged event-free survival,...

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Topics: Clinical Trials, Research, Front Page News

April 17, 2019

Biogen Presents New Data Regarding Adults and Infants with SMA

Biogen Presents New Data Regarding Adults and Infants with SMA

Biogen has announced it will present new data illustrating the rapidly progressive nature of spinal muscular atrophy (SMA) in adults, adolescents and older...

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Topics: Clinical Trials, Research, Front Page News

April 16, 2019

Community Update Survey Q&A

Community Update Survey Q&A

Cure SMA recently launched the third annual Community Update Survey to address important issues in SMA treatment and care. The Community Survey covers several areas that are relevant to the real-world experiences of people living with spinal muscular...

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Topics: Community & Awareness, Our Impact, Research, Front Page News

April 16, 2019

2019 Annual SMA Conference Events Announced

2019 Annual SMA Conference Events Announced

The 2019 Annual SMA Conference is just over two months away and Cure SMA is excited to announce the details of the events held at this year’s conference.

Open to all conference attendees, the popular Meet & Greet will be held on the...

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Topics: Conference, Front Page News

April 12, 2019

Cure SMA Grants More Than 900 Scholarships for Annual SMA Conference

Cure SMA Grants More Than 900 Scholarships for Annual SMA Conference

Cure SMA is pleased to share that we have granted over 900 scholarships to date for the Annual SMA Conference taking place June 28-July 1, 2019 at Disneyland Resort in Anaheim, CA. Each year, the organization offers scholarships to newly diagnosed families, adults (18 and over) with SMA, and...

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Topics: Support & Care, Conference, Front Page News

April 11, 2019

Cure SMA Care Center Network Expands to 10 Sites

Cure SMA Care Center Network Expands to 10 Sites

In 2018, Cure SMA launched the SMA Care Center Network, a collection of specialized clinics across the nation to help ensure all those living with spinal muscular atrophy (SMA) are able to receive high-quality, multidisciplinary care and access to new therapies. As of April 2019 there are 10...

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Topics: Support & Care, Our Impact, Front Page News

April 8, 2019

2019 Annual SMA Conference Schedule is Released

2019 Annual SMA Conference Schedule is Released

Cure SMA has released the schedule for the 2019 Annual SMA Conference, which will be held at the Disneyland Hotel in Anaheim, California from Friday, June 28 – Monday, July 1.

We look forward to...

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Topics: Conference, Front Page News

April 8, 2019

Thank You Cure SMA Volunteers!

Thank You Cure SMA Volunteers!

Happy National Volunteer Week! This week we're celebrating our Cure SMA volunteers. 

Each year, Cure SMA hosts over 300 local events, the Annual SMA Conference, and sends out thousands of resources including information packets, care packages, and equipment.  Without our wonderful...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

April 4, 2019

2019 Annual SMA Conference Registration Continues to Grow!

2019 Annual SMA Conference Registration Continues to Grow!

The 2019 Annual SMA Conference is rapidly approaching and conference registration is growing just as quickly!

This year’s conference will be one of the biggest ever and will include the Family Conference, the Researcher Meeting, and the Clinical Care Meeting.

Hotel rooms...

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Topics: Support & Care, Conference, Front Page News

April 3, 2019

Cure SMA Awards $150,000 Grant to Jocelyn Cote, PhD, University of Ottawa

Cure SMA Awards $150,000 Grant to Jocelyn Cote, PhD, University of Ottawa

Cure SMA and Cure SMA Canada have awarded a $150,000 research grant to Jocelyn Cote, PhD, at the University of Ottawa for his project, “Investigating the contributions of CARM1 and HuR misregulation to SMA skeletal muscle and NMJ defects.”

While an essential role for SMN in...

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Topics: Research, Front Page News

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