News

November 20, 2017

7th Annual Hope on the Hill Congressional Dinner Achieves $1 Million Milestone

7th Annual Hope on the Hill Congressional Dinner Achieves $1 Million Milestone

This year’s 7th Annual “Hope on the Hill” Congressional Dinner will be held on Wednesday, November 29, bringing together families, government, and industry to mark the first-ever FDA approval of a treatment for SMA, and look forward to the next stages for our community....

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Topics: Our Impact, Events & Fundraising, Front Page News

November 14, 2017

SMA Advocates Testify at Federal Newborn Screening Meeting

On Wednesday, November 8, advocates testified at the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) in support of spinal muscular atrophy newborn screening efforts at the federal division of Health and Human Services.

The advisory committee reviews conditions for addition to the Recommended Uniform...

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Topics: Our Impact, Advocacy, Front Page News

November 7, 2017

Biogen Issues Community Update on Spinraza

Biogen Issues Community Update on Spinraza

Biogen has provided the following community statement on Spinraza. 

Dear Members of the SMA community,

As part of our commitment to the SMA community to provide ongoing and comprehensive communications about SPINRAZA® (nusinersen), we are pleased to share that the...

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Topics: Clinical Trials, Research, Front Page News

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