July 10, 2017
Governor Eric Greitens today signed into law Missouri Senate Bill 50, instituting newborn screening for spinal muscular atrophy (SMA). The bill makes Missouri the first state in the country to screen all newborns for SMA. The legislation was sponsored by Representative Becky Ruth, a legislator with a longstanding commitment to expanding...
July 2, 2017
Cure SMA Launches Newborn Screening Grassroots Advocacy Campaign for Spinal Muscular Atrophy Newborn Screening
Today, as part of the Annual SMA Conference, we announced the launch of a new grassroots advocacy campaign to implement newborn screening for spinal muscular atrophy. Today’s kick-off event is a symposium on newborn screening advocacy, held as part of the Annual SMA Conference in Orlando, FL.
One state, Missouri, has legislation...
July 1, 2017
We’ve recently released an update to the SMA drug pipeline. This latest version includes:
- 19 active programs, including one approved therapy.
- 14 pharmaceutical partners.
- 5 programs in clinical trials.
- An ever-increasing...