March 23, 2017
The Cure SMA Coverage and Payment Policy Project has two distinct but complementary tracks:
- Outreach on behalf of our community. We’re working with public and private insurers, regulators, and other stakeholders, advocating for prompt, comprehensive coverage for SMA...
March 21, 2017
Genentech Roche provided the following community statement with clinical trial updates for SUNFISH (Type 2/3), FIREFISH (Type 1) and JEWELFISH.
Dear SMA community,
At Genentech (A Member of the Roche Group) we are committed to addressing the urgent needs of...
March 20, 2017
The American College of Obstetricians and Gynecologists has released updated guidance on carrier testing for genetic conditions. The updated guidance includes, for the first time, a...