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Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Conference Conference Conference

2019 Annual SMA Conference

Thanks for a wonderful 2018 Annual SMA Conference! We hope to see you at Disneyland!

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Events Events Events

Spring Events

Spring events season is around the corner. Join us! Find an upcoming event in your area, or host your own event.

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Cure SMA Awards $150,000 Grant to Krysta Engel, PhD, University of Colorado

Cure SMA Awards $150,000 Grant to Krysta Engel, PhD, University of Colorado

Audrey Lewis founded Families of SMA, now Cure SMA, 34 years ago. Audrey recognized early on the importance of attracting new and talented...

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Cure SMA Attends the 71st Annual American Academy of Neurology (AAN) Meeting in Philadelphia

The American Academy of Neurology (AAN) 2019 Annual meeting wrapped up in Philadelphia, Pennsylvania on May 10th, 2019. The AAN Annual meeting...

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Team Biogen Runs from Chicago to Madison, Raising Over $12,000 for Cure SMA

Team Biogen Runs from Chicago to Madison, Raising Over $12,000 for Cure SMA

On Friday, May 17th to Saturday, May 18th, Team Biogen will hit the ground running in the 2019 Reebok Ragnar Great Midwest, a 14-person relay...

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Novartis Issues Community Statement on Branaplam Clinical Study

Novartis Issues Community Statement on Branaplam Clinical Study

Dear SMA Community,

We are writing to inform you that enrollment to the ongoing branaplam clinical study is now closed....

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Biogen’s SPINRAZA® (nusinersen) Receives Positive Recommendation from NICE for Funding in the United Kingdom for the Treatment of Infants, Children and Adults with Spinal Muscular Atrophy

Biogen’s SPINRAZA® (nusinersen) Receives Positive Recommendation from NICE for Funding in the United Kingdom for the Treatment of Infants, Children and Adults with Spinal Muscular Atrophy

Biogen Inc.

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