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Spinraza Access and Updates

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Learn more about the approval of Spinraza.

We recently sat down with SMA researchers, Cure SMA staff, and families in our community to talk about the approval of Spinraza (nusinersen). Listen to their words of gratitude and excitement.

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Spring Events

Spring event season is about to kick off. Join us! Find an upcoming event in your area, or host your own event.

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The European Medicines Agency (EMA) Recommends Granting Marketing Authorization in the European Union for Spinraza

The European Medicines Agency (EMA) Recommends Granting Marketing Authorization in the European Union for Spinraza

The European Medicines Agency (EMA) has recommended granting a marketing authorization in the European Union (EU) for Spinraza. The...

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SMA Patient-Focused Drug Development Meeting with the FDA Set for Next Week

SMA Patient-Focused Drug Development Meeting with the FDA Set for Next Week

The SMA community is eagerly looking forward to next week’s Patient-Focused Drug Development (PFDD) Meeting with the FDA.

Over 400...

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Cure SMA Awards $75,000 Grant to Jean Giacomotto, PhD, University of Queensland, Australia

Cure SMA Awards $75,000 Grant to Jean Giacomotto, PhD, University of Queensland, Australia

Cure SMA has awarded a $75,000 research grant to Jean Giacomotto, PhD, at the University of Queensland, for his project, "Zebrafish models of...

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Cure SMA Publishes Second Journal Article on the Patient Voice

Cure SMA, along with collaborators from Biogen and the SMA Foundation, have published

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Cure SMA Awards $30,000 Grant to Remy Bordonne, PhD, CNRS-Centre National de Recherche Scientifique, France

Cure SMA Awards $30,000 Grant to Remy Bordonne, PhD, CNRS-Centre National de Recherche Scientifique, France

Cure SMA has awarded a $30,000 research grant to Remy Bordonne, PhD, at CNRS-Centre National de Recherche Scientifique, for his project,...

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