


August 7, 2019
Cure SMA Releases Status Update on Data Accuracy Issues with Zolgensma
Yesterday, the FDA...
August 6, 2019
FDA Issues Statement on Data Accuracy Issues with Recently Approved Gene Therapy
Today, the FDA...
August 5, 2019
Biogen Issues Community Statement on Spinraza
Biogen has provided the following community statement on Spinraza.
Dear members of the SMA community,
Following a busy...
August 1, 2019
SMA Awareness Month 2019 Has Begun!
The SMA community officially recognizes August as Spinal Muscular Atrophy Awareness Month and Cure SMA has been coordinating activities since...
July 25, 2019
Cure SMA Welcomes the New North Florida and Oklahoma Chapters
Cure SMA is pleased to announce the creation of two new chapters: North Florida and Oklahoma. The chapters are eager to begin helping families...
There is a lot of advocating, educating, and fighting that are part of our daily lives due to lack of knowledge about SMA. Our earlier years would have been much easier if health care providers had more knowledge about SMA. Now is the time for EVERYONE to get involved and help change the future of SMA care.
— Kara Forcier, Minnesota — Kara's son Zachary lives with SMA Type 2.
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