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Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Learn more about the approval of Spinraza.

We recently sat down with SMA researchers, Cure SMA staff, and families in our community to talk about the approval of Spinraza (nusinersen). Listen to their words of gratitude and excitement.

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Spring Events

Spring event season is about to kick off. Join us! Find an upcoming event in your area, or host your own event.

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Missouri is the First State to Institute Newborn Screening for Spinal Muscular Atrophy

Governor Eric Greitens today signed into law Missouri Senate Bill 50, instituting newborn screening for spinal muscular atrophy (SMA). The bill...

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Cure SMA Launches Newborn Screening Grassroots Advocacy Campaign for Spinal Muscular Atrophy Newborn Screening

Today, as part of the Annual SMA Conference, we announced the launch of a new grassroots advocacy campaign to implement newborn screening for...

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Summer 2017 Update to SMA Drug Pipeline is Released

Summer 2017 Update to SMA Drug Pipeline is Released

We’ve recently released an update to the SMA drug pipeline. This latest version includes:

Cure SMA Funded Standard of Care Paper Published in Neuromuscular Disorders Journal

The journal Neuromuscular Disorders has published a...

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Thank You to Our 2017 Annual SMA Conference Exhibitors

Thank you to the following exhibitors who are generously supporting the 2017 Annual SMA Conference. This incredible and unique event would not...

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