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Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Conference Conference Conference

2019 Annual SMA Conference

Thanks for a wonderful 2018 Annual SMA Conference! We hope to see you at Disneyland!

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Events Events Events

Fall Events

Fall event season is in full swing. Join us! Find an upcoming event in your area, or host your own event.

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Cure SMA Announces Expanded Phase 3 of SMA Industry Collaboration

Cure SMA Announces Expanded Phase 3 of SMA Industry Collaboration

Cure SMA is pleased to announce the launch of an expanded Phase 3 of our SMA Industry Collaboration. The

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Congratulations to the Winners of Cure SMA's Video Contest!

Congratulations to the Winners of Cure SMA's Video Contest!

Cure SMA recently hosted a video contest to raise SMA awareness and provide the opportunity for teens and young adults (aged 12 to 21) to share...

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Heather Tomko on Goal-Setting for the New Year

Heather Tomko on Goal-Setting for the New Year

Heather Tomko, Ms. Wheelchair USA 2018, shares her tips for starting 2019 strong. Thank you to Heather for contributing to...

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Fall 2018 Issue of Directions Now Available

Fall 2018 Issue of Directions Now Available

The Fall 2018 issue of Directions is now available online. Please...

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Community Spotlight: Rebecca Smith and Micah Biello

Community Spotlight: Rebecca Smith and Micah Biello

When Micah Biello was diagnosed with spinal muscular atrophy type 1, no one in his family knew about the disease. Now four years later,...

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