News
June 25, 2019
Cure SMA Receives $150,000 Grant From the Oscar G and Elsa S Mayer Family Foundation
Cure SMA is pleased to announce receipt of $150,000 grant over three years, awarded by the Oscar G. and Elsa S. Mayer Family Foundation to support continued development of the SMA Care Center Network.
The mission of the SMA Care Center Network is to:
- Improve SMA clinical care and disease management, leading to creation...
Topics: Support & Care, Front Page News
June 21, 2019
Thank You to Our 2019 Annual SMA Conference Sponsors!
Thank you to the following sponsors who are generously supporting the 2019 Annual SMA Conference. This one-of-a-kind event would not be possible without your support!
For more information about the below companies, please visit our
Topics: Conference, Front Page News
June 20, 2019
Thank You to Our 2019 Annual SMA Conference Exhibitors!
Thank you to the below exhibitors who are generously supporting the 2019 Annual SMA Conference. This incredible and unique event would not be possible without your support!
For more information on the following companies, please visit our
Topics: Conference, Front Page News
June 11, 2019
The 2019 Annual SMA Conference Booklet is Now Posted Online
The 2019 Annual SMA Conference booklet is now available for download. The booklet includes information on workshops, special events and details of the Annual SMA Conference, including:
1. A complete schedule, full...
Topics: Conference, Front Page News
June 11, 2019
Family Friendly Research Poster Session Presenters Announced
The Family Friendly Research Poster Session will be held on Saturday, June 29th from 6:30pm to 8:00pm at the 2019 Annual SMA Conference.
The Family Friendly Research Poster Session allows for one-on-one interactions between families and researchers. Cure SMA has invited...
Topics: Conference, Research, Front Page News
June 6, 2019
Biogen Issues Q2 Community Statement on Spinraza
Dear members of the SMA community,
We are grateful for the opportunity to continue to help support individuals with spinal muscular atrophy (SMA), their caregivers and families. We deeply appreciate our shared goals and are dedicated to helping people with SMA, of all ages, and welcome...
Topics: Clinical Trials, Research, Front Page News
June 5, 2019
Team Cure SMA Celebrates Global Running Day!
Happy Global Running Day! Is Global Running Day a made-up holiday? Kind of. But unlike other made-up holidays dedicated to eating pancakes or taking selfies, Global Running Day has the purpose of celebrating running and encouraging people to get active. Today, we’d love for you to...
Topics: Events & Fundraising, Front Page News
June 4, 2019
Scholar Rock Announces Positive Final Results from Phase 1 Clinical Trial of SRK-015 in Healthy Volunteers
Scholar Rock today announced positive final top-line results from the Phase 1 clinical trial of its product candidate, SRK-015, a highly specific...
Topics: Clinical Trials, Research, Front Page News
June 3, 2019
Cure SMA to Host "Evening in the Park" at Disneyland Thanks to Support from AveXis
Conference attendees will enjoy a magical “Evening in the Park” at Disneyland thanks to special support from AveXis, a Novartis company.
All registered attendees for the family conference will receive (1) ticket that provides twilight entry to one of the...
Topics: Conference, Front Page News
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