Conference

The Annual SMA Conference is an invaluable resource for the entire SMA community.

2019 Annual SMA Conference

Our annual conference is the largest SMA conference in the world. Through the conference, we bring together researchers, healthcare professionals, and families to network, learn, and collaborate. The family conference includes a variety of workshops, keynote sessions with leading researchers, a family-friendly research poster session, and more—plus fun events like our meet-and-greet, pajama party and movie night, and teen and adult social activities.

The 2019 Annual SMA Conference will be held June 28 - July 1 at Disneyland in Anaheim, CA. 

Register for the 2019 Annual SMA Conference.

Questions? Email conference@curesma.org or call 800-886-1762. 


SMA Researcher Meeting

The Annual SMA Conference is really two separate events—one for families and one for researchers—that run in parallel, so that families, researchers, and clinicians can interact with and learn from one another. If you are an academic or clinical researcher, use the links to learn more and to register.

SMA Researcher Meeting 


Inaugural Clinical Care Meeting

The Annual SMA Conference added a third component to the family conference and researcher meeting. We held the inaugural Cure SMA Clinical Care Meeting at the 2018 Annual SMA Conference. The target audience for this meeting included clinicians who diagnose and care for SMA. 

Clinical Care Meeting 


2018 Annual SMA Conference Presentations

Please note: Pictures that did not have consent to be posted on the Cure SMA website have been removed from the presentations. 

Past Conferences

The following are presentations and highlights from previous Annual SMA Conferences—whether you're looking for a refresher on what you learned at conference, or weren't able to attend and want to see what you missed.

2017 Annual SMA Conference 

2016 Annual SMA Conference

Keynote Presentations and Research Updates

Patient Care and Family Presentations

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