Grief & Loss

The entire Cure SMA community extends its deepest sympathy to those who have lost someone due to SMA.

We know that this is an incredibly difficult time, and we are here to provide unconditional support so that you can make choices that are consistent with your family’s beliefs and values.

Our family support staff is here to help by connecting you with resources or simply by being a listening ear. If you are interested in connecting with other SMA families who have lost a loved one our family support staff can help put you in touch with one of these families.

In addition, if you are looking for local support, many Cure SMA chapters can provide you with local resources. Chapters may also be able to put you in touch with a local SMA family who is willing to share from their experiences of losing a loved one to SMA, and to listen as you process your own emotions and experiences.

Helpful Links

Many families have found the following organizations and resources helpful as they deal with the loss of their loved one: 

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