Current Educational Programs

PT Survey on Behalf of Northwestern University

Dear physical therapist:

Northwestern University is conducting a survey on physical therapy interventions for those with spinal muscular atrophy (SMA). We are inviting you, as a pediatric physical therapist, to take part in a survey examining current physical therapy practice trends and facilitators and barriers to physical therapy care for those with SMA and how current practice supports recommended standards of care. You may also feel free to share this link with other physical therapists who may also be treating those with SMA. This study has been approved by the Northwestern University Institutional Review Board (STU00208232). Please direct any questions or concerns to or Jessica Trenkle, PT, DPT or Kristin Krosschell PT, DPT.

Link to survey:

https://is.gd/PT_for_SMA

Sincerely,
Jessica Brugman, SPT
Annie Peterson, SPT
Katherine Roback, SPT
Kristin Krosschell, PT, DPT, PCS
Jessica Trenkle, PT, DPT, PCS

Therapist Mentoring Program

Thank you for your interest in the Therapist Mentoring Program. At this time, the program has completed. Please refer to the below resources and contact patientcare@curesma.org with any patient care related questions. 

Resources for the Program

These manuals and proformas are shared with permission from the International SMA Consortium which includes the PNCRN, Italian SMA Network and SMA Reach UK. 

Consensus Statement for Standard of Care in Spinal Muscular Atrophy 

Family Guide to Consensus Statement for Standard of Care in Spinal Muscular Atrophy 

Cure SMA's Care Series Booklet: Musculoskeletal System 

Children's Hospital of Philadelphia Infant Test of Neuromuscular Disorders (CHOP INTEND)

Expanded Hammersmith Functional Motor Scale (HFMSE)

Revised Upper Limb Module (RULM) Manual 

Revised Upper Limb Module (RULM) Proforma 

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