Research Publications
Compass, Cure SMA's research newsletter, is published 2-4 times per year.
Compass
Winter 2019
Topics include: basic research grant funding and an updated SMA drug pipeline.
Fall 2018
Topics include: SMA Care Center Network and clinical data registry.
Summer 2018
Topics include: basic research grants and interviews with grantees.
Spring 2018
Topics include: Cure SMA's newborn screening efforts, including both federal and state level advocacy.
Winter 2018
Topics include: Cure SMA community survey, how data improves research, care and coverage in the SMA community.
Fall 2017
Topics include: SMA Industry Collaboration, results of the Patient Focused Drug Development meeting with FDA.
Summer 2017
Topics include: basic research grants, new research funding.
Summer 2016
Topics include: drug discovery grant awards, SMA drug pipeline updates, new research funding.
Spring 2016
Topics include: basic research grant awards, clinical care grant awards.
Fall 2015
Topics include: SMA Researcher Meeting, session summaries.
Summer 2015
Topics include: drug discovery grant awards, SMA drug pipeline update.
Spring 2015
Topics include: basic research grant awards, descriptions of newly funded projects.
Fall 2014
Topics include: SMA researcher meeting, CME conference, updates from current research.
Spring 2014
Topics include: clinical care research grant awards, descriptions of newly funded projects, CME conference.
Winter 2014
Topics include: basic research grant awards, descriptions of newly funded projects.
Fall 2013
Topics include: The Ins and Outs of Antisense Drugs, Cure SMA antisense drug grants, Isis update.
Summer 2013, issue #2
Topics include: SMA Research Group Meeting, summaries of ongoing drug programs.
Summer 2013, issue #1
Topics include: update on drug pipeline, Cytokenetics grant, Dr. Lee Rubin drug discovery grant.
Winter 2012
Topics include: basic research grant awards, descriptions of newly funded projects.
Spring 2012, issue #2
Topics include: Dr. Peter Schultz drug discovery grant, pipeline update, drug development process, small molecules.
Spring 2012, issue #1
Topics include: Dr. Brian Kaspar drug discovery grant, CNS-delivered gene therapy, basics of gene therapy approach.
Fall 2011
Topics include: basic research grant awards, descriptions of newly funded grants, SMA research group meeting.
Spring 2010
Topics include: drug pipeline update, meet the TAC, Isis update, Dr. Brian Kaspar drug discovery grant.
Spring 2009
Topics include: Quinazoline program update, Paratek update, high purity motor neurons.
Summer 2008
Topics include: CARNI-VAL trial results, VPA for SMA.
Spring 2008
Topics include: basic research grant awards, decriptions of newly funded projects, basic research program goals.
Winter 2007
Topics include: basic research grant awards, description of newly funded projects.
Fall 2007
Topics include: SMA Research Group Meeting, Quinazoline program update.
Spring 2007
Topics include: first novel clinical candidate for SMA, Paratek update.
Holiday 2007
Topics include: clinical trials introduction, clinical trials update.
Fall 2006
Topics include: CARNI-VAL trial update, clinical trial process.
Summer 2006
Topics include: SMA Research Group Meeting, ongoing program updates.
Winter 2006
Topics include: basic research grant awards, discoveries on the role of SMN, possible drug targets.