News

December 3, 2018

Novartis Announces FDA Filing Acceptance and Priority Review for AVXS-101

Novartis Announces FDA Filing Acceptance and Priority Review for AVXS-101

Novartis today announced that the U.S. Food and Drug Administration (FDA) has accepted the company’s Biologics License Application (BLA) for AVXS-101, now known as ZOLGENSMA®...

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Topics: Clinical Trials, Research, Front Page News

November 29, 2018

Register for Cure SMA's Webinar on SMA Treatments and Clinical Trials

Register for Cure SMA's Webinar on SMA Treatments and Clinical Trials

On Wednesday, December 12th, at 12:00pm CST (10:00am PST/11:00am MST/1:00pm EST) Cure SMA will hold a webinar updating the community on the latest information on SMA treatments and trials. Topics covered will include:

  • AveXis's BLA filing with the FDA
  • Status of access...

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Topics: Support & Care, Clinical Trials, Front Page News

November 29, 2018

Scholar Rock Announces Publication of Preclinical Data on the Therapeutic Benefit of Inhibiting Myostatin Activation in Models of SMA

Scholar Rock Announces Publication of Preclinical Data on the Therapeutic Benefit of Inhibiting Myostatin Activation in Models of SMA

Scholar Rock, a clinical-stage biopharmaceutical company focused on the treatment of serious diseases in which protein growth factors play a fundamental role, today announced the publication, “Specific...

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Topics: Clinical Trials, Research, Front Page News

November 14, 2018

Cure SMA Launches "SMArt Moves" for Early Diagnosis and Treatment

Cure SMA Launches

Cure SMA today launches SMArt Moves, a new disease awareness and educational campaign to empower parents, pediatricians and other healthcare professionals to swiftly recognize and diagnose the early signs of motor delays. This allows infants and...

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Topics: Community & Awareness, Our Impact, Front Page News

November 13, 2018

8th Annual "Hope on the Hill" Congressional Dinner Will Be Held Later This Month in Washington D.C.

8th Annual

The 8th Annual “Hope on the Hill” Congressional Dinner will be held on Tuesday, November 27, bringing together SMA families, government officials, and industry leaders to look forward to the...

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Topics: Advocacy, Events & Fundraising, Front Page News

November 6, 2018

Cure SMA is Thrilled to Launch a New Support Program for Teens and Adults with SMA

Cure SMA is Thrilled to Launch a New Support Program for Teens and Adults with SMA

Along with funding SMA research and care, Cure SMA provides thousands of individuals and families with vital family support and resources that help people navigate life with SMA. In addition to our current support programs, Cure SMA is thrilled to launch a brand-new program specifically for...

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Topics: Community & Awareness, Support & Care, Front Page News

November 1, 2018

Summit of Strength Program Receives Positive Feedback and Increases Attendance

Summit of Strength Program Receives Positive Feedback and Increases Attendance

Attendance and feedback have been extremely positive for this new program.

The Cure SMA Summit of Strength Program kicked off in July and has continued to grow with great success! The Summit of Strength is a day of community and learning; it brings together families in their local...

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Topics: Community & Awareness, Support & Care, Front Page News

October 31, 2018

Registration is Now Open for the 2019 Annual SMA Conference!

Registration is Now Open for the 2019 Annual SMA Conference!

Registration is now open for the 2019 Annual SMA Conference! This year’s conference will be held at the Disneyland Hotel in Anaheim, CA from Friday, June 28 through Monday, July 1, 2019. We are excited to...

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Topics: Conference, Front Page News

October 30, 2018

Kansas Adopts SMA Newborn Screening as Several Other States Move Closer to Adoption

Kansas Adopts SMA Newborn Screening as Several Other States Move Closer to Adoption

Progress is currently being made in several states for getting SMA added to Newborn Screening panels. We are delighted to share this news with you as some states move closer to adoption of SMA Newborn Screening.

Kansas Adopts SMA Newborn Screening

Kansas has adopted SMA...

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Topics: Our Impact, Advocacy, Front Page News

October 24, 2018

Meet the NDEAM Webinar Panelists

Meet the NDEAM Webinar Panelists

October is National Disability Employment Awareness Month (NDEAM)! Hear directly from adults living with SMA in the workforce. Register for Cure SMA’s first NDEAM webinar. The...

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Topics: Community & Awareness, Front Page News

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